My Top 5 Strategies For Dealing With A CRPS Flare
Written by Melissa Wardlaw for the RSDSA blog
As a person living with CRPS, Melissa has had to manage a number of full body flares and pain for almost two decades. Because of this, Melissa was able to compile a list of tips that work for her to deal with pain flares. While these may not work for everyone, it may be a great starting point.
As a patient who has suffered from systemic CRPS/RSD (full-body) and multiple other chronic illnesses and pain for over 15 years now, one unfortunate factor I can rely on in my medical journey is knowing I will experience flares; aka, an increase or exacerbation of pain & symptoms. Flares can be mild or severe, short or long, and can occur because of many reasons, including the following:
- Weather changes
- Overdoing it
- Not enough rest/recuperation (poor preparation & lack of pacing)
- Excessive stress/extreme emotions
- No reason at all as we know chronic illnesses and pain have a mind of their own
On a recent birthday trip with my mother to a nearby hotel resort and casino, I experienced a very severe flare. I was prepared for this to happen, as flares often occur when I’m traveling or out of my comfort zone. This particular flare was likely caused by a lack of rest and excessive activity, but it came on very quickly and hit me like a ton of bricks.
The main area that happened to be flaring most severely at the time was my right leg, where I not only have CRPS/RSD, but also sciatica and fibromyalgia. The intensity of my pain, muscle spasms, restlessness and other central nervous system-related symptoms instantly made me want to jump off a bridge! For those of you who have CRPS/RSD, which is rated the highest of all chronic pain syndromes on the McGill Pain Scale, I’m sure I don’t have to tell you just how bad it hurts all the time, and especially during a flare.
Because of how intense this flare was, I was in tears. My mom, who is also my rock, best friend and fiercest advocate, was there with me. Needless to say, she has witnessed multiple flares and has seen me at my worst (and my best)! I was thankful she was there for me during this time. So what strategies did I use to handle my flare?
1) REST/MEDITATION/DEEP BREATHING
This method is tried and true, and it works! The first thing I did was to go to the room, turn off the lights and lie down in bed to rest. I had been overdoing it thus far on the trip and hadn’t taken a much-needed break. I believe this is one of the many reasons that contributed to my flare. I started breathing deeply, focusing on calming down my nervous system. You see, when our pain and symptoms are flaring that intensely, it causes our heart rate to increase, and the fight or flight response (which is always activated with CRPS anyways) to kick in even further. The stress mechanism is triggered, flooding the body with cortisol and other hormones that make our pain and symptoms even worse. So the best thing to do is to counteract this response by calming down our emotions and nervous system, using deep breathing and meditation tactics. There are multiple guided meditation videos, short and long, that are geared specifically towards chronic pain. By doing a quick search using keywords such as “Meditation for Chronic Pain” on YouTube, you’ll find hundreds of videos to meet your specific needs. Example videos include:
Thankfully my mom was able to help with massaging my leg (etc.) but one of the constant strategies I use especially when having a flare is self-massage. I’m constantly massaging various parts of my pain-ridden body as any other sensation than pain helps to offset the burning and seething as well as various other kinds of pain and symptoms coursing through my body. Massage also helps with stress management, relaxation and healing by reducing inflammation present in CRPS and other chronic pain issues. Stretching and shaking my legs (and other extremities) helps to not only bring circulation back into the areas but also increases energy lost to the ever-present fatigue chronic pain brings.
3) PAIN SPRAY
I would be lost without my pain spray! I have tried just about every pain cream, gel and spray on the market and the best I’ve found is a rare spray, only sold in a few places (most outside of the US), called Muscle Mist. Yes it is expensive, but it is all natural and not only does it help to temporarily distract from the intensity of the pain and symptoms, but it also reduces inflammation by restoring blood flow to the area. Additionally, it provides stress relief with the natural oils in the spray. Some people even think it smells good too, which I may debate, although I can attest to the fact it definitely smells better than 3/4 of the ones I’ve tried! You can buy Muscle Mist here (and no I don’t get anything if you purchase it LOL): https://www.aromasensations.com/musclemist.php
4) TENS UNIT
Similar to my pain spray, I don’t go anywhere without my TENS unit! I’m sure most of you are familiar with this technology, but if not, (TENS) Transcutaneous electrical nerve stimulation is a therapy that uses low-voltage electrical current for pain relief. The electricity from the electrodes stimulates the nerves in an affected area and sends signals to the brain that block or “scramble” normal pain signals. Another theory is that the electrical stimulation of the nerves may help the body to produce natural painkillers called endorphins, which may block the perception of pain. The unit is portable and comes with four electrode pads, which you can wear on any part of your body. Because I am allergic to the traditional electrodes, I have to get special blue gel ones for sensitive skin so I don’t break out in a rash. TENS units are FDA approved and very inexpensive to buy over the counter without a prescription. The one I use is the TENS 7000 which can be purchased from many places, including Amazon.
When I am having a flare, it is particularly helpful because I can put all my electrodes on the area that is most painful and it helps to reduce the intensity.
Focusing on a flare is hard not to do, especially when it is nearly impossible to think of anything else. But that is exactly what I have found is the worst thing to do! Pain is akin to a toddler having a tantrum and thrives off attention; the more attention you give it, the more it demands. So instead of crying, screaming, cussing or getting more anxious, all things that cause your body and nervous system more stimulation, the best thing to do is try and focus on something else, anything else. After resting and calming myself down for a bit, I decided to get up, pull myself together and go back down to the blackjack table! And guess what – by using the method of distraction and not giving the pain more power and attention, I was able to reduce it and power through my flare much more effectively.
In conclusion, whatever techniques are used to battle a flare, whether short or long, mild or severe, the key is to know we CAN get through it! After all, we have done it many times before and will do it many times again. And we are still here – still standing and fighting! We have come a long way in understanding our own bodies and pain/symptoms and will only continue to learn more and develop more effective coping mechanisms. We are stronger than our illnesses and that’s what makes us chronic illness and pain warriors!
Melissa Wardlaw was diagnosed with CRPS/RSD as a result of a spinal cord injury (non-paralyzing) suffered during a routine medical procedure. She also suffers from fibromyalgia, lumbar and cervical degenerative disc disease, migraines and additional chronic medical issues. Formerly a Business Executive/Consultant with an MBA in Entrepreneurship, she is also a Certified Career Coach and Certified Professional Resume Writer, and now spends her time career coaching and offering peer counseling/advocacy (pro bono) to those dealing with similar medical struggles. As a fierce advocate, she also runs both an in-person and online Support/Empowerment Group for CRPS/RSD and Chronic Illnesses/Pain in the Metro Atlanta area. Melissa is an avid volunteer and supports multiple organizations committed to rescuing animals and helping those with chronic illnesses/pain. She is a fur mom to two cats, who graciously “allow” her to live with them in their new house in Atlanta. She can be reached at email@example.com.
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Any good doctors for crps of the right lower extremity I have been off of work for 8 months now due to stepping down wrong at work I sprained my ankle and got burning and tingling pains all through the my foot now it swells up and turns different colors almost every day are there any good doctors near the loss Angeles area that know about crps
I have been diagnosed with CRPS after an injury (fractured tibial). Gabapentin did not reduce the pain. Side effects from Gabapentin, NSAIDS, and cortisone shots caused Purpura. Nothing has truly helped except massage and meditation.
HI there- new to all of this – broke my hip and arm. They both healed perfectly to the happy surprise of my surgeons and then the craziest of things happened about four months into my healing. Although better, I stepped on a dog bone and then experienced bizarre body pains. Pain then subsided to more my foot and then by stopping on the backs of my shoe – body pain and flare ups and a whole new world. I have been on some meds and cannot get a clear diagnosis as the flare ups can be feet alone or arms and legs and so bizarre. If anyone has ever heard of this please let me know. First they thoght neuropathy, then Complex Pain Syndrome, then Regional Pain syndrome and just ruled out RSD. All I know is that it is totally weird. If you have anything or anywhere that you have been, please let me know. So grateful that they ruled out the biggies and blood and screenings came back good but just out of a science fiction movie as it is just something that does n to seem to fit into a specific box. Thanks and wishing everyone good health and pain free days!
Hello, Carolyn. Are you looking for a physician in your area? If so, please let us know what state you live in!
Thank you Melissa for sharing your story and your ways of coping with your flares. I have CRPS, Fibromyalgia, and it seems like I stay in a flare. I’m going to try your techniques as I’m going crazy and out of my mind. Thanks again and I hope you continue to feel better!
Being a fellow traveler on this CRPS path, one thing that always helped me was distraction. Unfortunately, I did not realize that I also had Ehlers Danlos Hypermobility Type. By forcing myself to do something to the point where distraction occurred (High level of pain requires high level of input on the conscious side), I have severely damaged joints, tendons, and ligaments (genetically, they weren’t strong enough to begin with). I grew up with someone who overcame severe paralytic polio to walk and led a full life (though in constant pain). Stopping when I was hurting never seemed like an option until I completely lost function of my right leg. The medical establishment finally agreed that something indeed was wrong. I would probable not be walking again (or even here) today but for the amazing example/strength of human spirit for not giving up. ( <3 you, Bill Sr. )
A friend of mine forwarded this to me. I recently have been diagnosed with CRPS. I have had back surgery where I had fusion of T-1 to L4 3 years ago. I am still suffering from sciatica and inflamed piriformis . I thought that combined was causing my left leg pain. This has been going on for 3 years. Now my Dr. wants to fuse what is left of my spine by fusing L4 and L5. I’m scared to do it. Any advise? I am so happy to be in contact with you.