RSDSA has published a number of articles and gathered other information, including research studies, to help individuals and family members to understand this little-known and puzzling syndrome. You may feel free to print out/download content from this page, or call us at 877-662-7737 for paper copies.
RSDSA Community Update Archive
- Issue 1 Volume IV – Fall 2014
- Issue 1 Volume III – Summer 2014
- Issue 1 Volume II – Winter 2013
- Issue 1 Volume I – September 2013
Resource Directory
New Edition!
In Pain and Agonizing Over the Bills
This directory offers advice to those who suffer financial hardship as a result of their pain.
Resources for Veterans with CRPS
Brochures and Cards
Emergency Department Protocol for Patients with CRPS
This sheet is contains patient tips and hospital procedures for emergency room protocol for the CRPS patient. Included are hospital procedures, how to take blood pressure and pulse rate, transport and patient identification. Don’t leave home without it!
Helping Children/Youth With CRPS Succeed in School
This brochure is designed to help schools accommodate the special needs of children with CRPS is now available online.
Hospital Protocol for the CRPS Patient: Handle With Care!
The document goes lists over two dozen specific suggestions for a care plan in areas including: setting up the patient room, performing medical procedures, taking blood pressure and pulse rate, transporting, feeding, and identifying CRPS patients.
“I Have CRPS” HandiCard
This card describes CRPS from the point of view of a person with the syndrome and some suggestions on how others might help. Cards are free. We only ask for a small good-will donation to defray costs and to support our mission.
Pediatric CRPS Tri-Fold Brochure
This brochure offers information and resources for the family and friends of youth with CRPS and those who want to help.
Could this be CRPS/RSD
This brochure details the signs and symptoms of CRPS and presents some treatment options.
Take Flight With Hope: Stories of Hope and Transformation
This brochure offers an array of patient stories, and as Executive Director Jim Broatch, MSW, writes “People make changes, they move forward, they live lives they never imagined they could or would. CRPS brings huge losses, but, as you will read, there are significant gains as well.”
Single copies are available free for our members. Additional copies are available for $2 (members) and $3 (non-members).
“Telltale Signs of CRPS” HandiCard
To assist healthcare providers, patients, and families to better diagnose CRPS/RSD. Cards are free. We only ask for a small good-will donation to defray costs and to support our mission.
Treating Complex Regional Pain Syndrome: A Guide for Therapy
Brochure on treating CRPS from an occupational therapist.
Books
Medifocus Guide to Reflex Sympathetic Dystrophy Syndrome
A resource guide for the person with CRPS. Each guide has current and relevant CRPS research organized into categories for easy reading. Free updates are provided for 1 year.
Living with RSDS, written by RSDSA board members Linda Lang and Peter Moskovitz, MD, has been published by New Harbinger Publications, Inc. The 238-page book is the only publication of its kind dedicated to the challenges patients with CRPS face. It includes patient stories and medical information. The book is available from RSDSA for $17. Note: all of the authors’ proceeds will be donated to RSDSA.
Physical and Occupational Therapy Publications and Articles
For more PT/OT Resources, click here.
Treating Complex Regional Pain Syndrome: A Guide for Therapy
A brochure on treating CRPS from an occupational therapist.
Aquatic Therapy: Should You Fear to Tread…Water?