How to Obtain the Best Medical Care for CRPS
Written by Steven Feinberg, MD, MPH Board Certified, Physical Medicine & Rehabilitation Board Certified, Pain Medicine Feinberg Medical Group Palo Alto, CA and Rachel Feinberg, PT, DPT Director, Physical Therapy & Functional Restoration Program Feinberg Medical Group Palo Alto, CA for the RSDSA blog.
If you are reading this, it means you, a friend, or a loved one has been diagnosed with complex regional pain syndrome (CRPS). This article is not about diagnosing and treating CRPS but rather about how to obtain the best medical care for this diagnosis.
There are many good reasons to obtain the best medical care possible for this diagnosis. First and foremost is that early quality treatment has the best chance of resulting in the best outcome. Second, the wrong treatment can actually lead to a worsening of this condition. Third, from a practical standpoint, your insurance coverage may be limited and thus getting the right treatment first which is covered is very important.
There is both good and bad news. We will start with the bad news. Many of you will not have adequate insurance coverage to provide the absolute best care for CRPS. Problematic as well is that even with good insurance coverage, treatment available in your local community may not be ideal or even available. With that said, the good news is that if you will take time to educate yourself about your CRPS condition, you have a much greater chance of getting what you need to get better and to manage this condition.
While some treating physicians may focus on medications and interventional procedures (i.e., injections, device implantation, etc.), and these can certainly be an important part of treatment, the best treatment is approached from a biopsychosocial perspective by an interdisciplinary team of treaters. This means treating you as a whole person and paying attention to both the physical and psychological aspects of chronic pain. This approach involves coordinated medical care with a treatment team, other than yourself and significant others, including a physician pain specialist, a physical and/or occupational therapist and a psychologist.
In this type of biopsychosocial approach, it is critical that the person with CRPS, become educated about the condition and be the “captain of the ship” when it comes to managing medical care. Being passive and leaving it all up to the doctors and therapists just won’t work. The person with CRPS needs to understand his or her condition and how to treat it. That means becoming informed and educated. Whatever therapy is provided, it will not be enough if the CRPS patient doesn’t “practice” what they are taught 24/7 both at home and away from the doctor and the therapy center.
The ideal setting for treatment is where the physician is a rehabilitation-oriented pain specialist and not just a doctor focused on prescribing pills and doing procedures (i.e., nerve blocks, implanted devices, etc.). This means ideally, that the physician works closely with a physical and/or occupational therapist and a psychologist with expertise in treating CRPS. It is always best if they work out of the same facility as a team (this is called interdisciplinary) but even if they are in separate offices, it is important that they communicate and work together as a team (this is called multidisciplinary).
Getting back to the issue of education, while some physicians and therapists feel threatened by an educated patient who is knowledgeable and asks questions – and you need to be careful not to make the treater feel uncomfortable – it is perfectly okay to be educated about your problem and ask questions. High-quality treaters enjoy questions and are not threatened by knowledgeable patients. Questions you can ask include “Have you read up about CRPS?” and “Have you made yourself familiar with the usual medications and treatments prescribed for this condition?”
Here are some other things to consider when you are evaluating obtaining the best treatment for CRPS.
- Identify other individuals with this condition in your community to find how they have done with their treatment and who they have treated with. Does their physician, physical therapist and psychologist listen to them and provide effective treatment? Are they being provided education about the condition and a good home program to expand and work on what they are learning when they’re in therapy?
- Tell your primary care family physician that you are familiar with the diagnosis and want to make sure you are being referred to a pain physician who is rehabilitation oriented and not someone who focuses on prescribing medications and injections and other invasive treatments.
- Interview the doctor and therapist to see if they are truly familiar with and experienced in treating CRPS. Is the medical care provided truly coordinated between the various disciplines?
- Ask the physical therapist how commonly they treat people with CRPS and if they are familiar with some of the more recent graded motor imagery approaches such as mirror box therapy.
- If there is no physical therapist in your community that consistently treats people with CRPS, ask to treat with the therapist that sees the most people with chronic pain. Many of the same pain management skills can be applied to managing CRPS.
- As you speak with the physical therapist, see how willing they are to provide full answers to your questions. Quality CRPS treatment requires a lot of education and your therapist should be eager to provide you with the answers to your questions.
- Many psychologists deal with symptoms like depression and anxiety, but ideally, the psychologist needs to be trained in pain management. It is very important that they use cognitive behavioral therapy (CBT) as part of their therapy as CBT has been found to be highly effective for managing pain. Cognitive behavioral therapy is a form of psychological treatment that focuses on examining and changing the relationships between maladaptive or faulty thoughts, feelings, and behaviors.
The RSDSA website is a great source of information. Other sources of information are The American Chronic Pain Association and The ACPA Resource Guide to Chronic Pain Medications & Treatment.
Please consider making a donation to RSDSA today!
My sister has been diagnosed with RSD and she is suffering greatly, can you please email me a list of drs that treat this in fl; Orlando area and Boca raton area thank you!
Post left meniscus surgery I have developed severe CRPS that is rapidly spreading.
I’m 28 and am losing hope.
Any info is appreciated for Pittsburgh Pa area.
Wishing everyone suffering some healing or peace.
I need a specialist in the Hampton Roads Virginia area? Does anyone know someone my doctor is not super familiar with CRPS and its spreading so I need someone that understands.
My wife was recently diagnosed with CRPS. I’m wondering if you could please send me a list of recommended doctors in the area of Colorado, Idaho, Nebraska, South Dakota, Wyoming, and Utah? Thanks for what you do!
I emailed you today. Pls provide a list of doctors for CRPS for my husband, 37 yrs old. Came from a carpal tunnel surgery 🙁
Hello, Tara! What state do you live in?
Please send me a list of CRPS doctors. I live in NY- my sister is suffering greatly.
Hi, I have been diagnosed with CRPS and not and Yes and no and yes. I have been in pain for three years. I have done everything. Nerve blocks, ketamine, gabapentin. I have seen two of the top doctors/anesthisiologist in NYC and they disagree with each other. One said definitely CRPS and one said nope. Have been to other doctors and they are on the fence. In the mean time the back of my foot is all red and burns. I am ready to leave and get neridronate treatments overseas. One doctors said its a scar tissue pressing on the nerve and would do surgery Im petrified of this because this all occurred because of a surgery not needed and not explained gone horribly wrong.
Do you have any top doctors in this field in NYC or anywhere I am willing to travel for a specialist who can help or give me the confidence of a diagnosis.
I’m at the end of my rope and so depressed.
I have had CRPS / RSD for over 7 years which developed after the spine surgery recommended a year after the MVA that caused me multiple physical injuries.
I have moved & have to start over again & find a new team of doctors to help me with multiple issues.
I have been having difficulty finding physicians who understand CRPS / RSD, especially Neurologists in CA, and if necessary, I am willing to work it out in order to see doctors within my insurance network in states where some of my family members reside such as Maryland & Ohio.
Please send me CRPS / RSD physician lists for California, Maryland & Ohio.
Thank you very much for your help.
I was Dx with CRPS this past November. Per my own request I just started a program of PT and seeing a psychologist that work together. I already had a sympathetic nerve block that did not help at all. I am an active person and can no longer participate or engage my family in any active outdoors activities and barely even in our own home. I also can no longer work to help support the family as my job is very physical. I just changed Primary MD because my prior MD told me he does not believe in CRPS. Seriously! I am not convinced my new MD really knows what to do with me and has not referred me out except to have a 2nd ortho consult which honestly is pointless. Please send me a list of any MD’s that might help in or near San Diego, CA.
I am going to be moving to arkansas and need to find a doctor. Could you please email me a list. We will be near Mountain View but am will to travel for the best care possible. Thank you.
Could you please email a list of Specialists that aren’t just pain clinics, maybe a Neurologist in NH or Massachusetts area? Thank you
Would you please send me a list of CRPS doctors in Georgia? Thank You!
I was injured in 2014, had two surgeries to repair a distal biceps tendon, first surgery failed, nerves damaged with the second surgery. CRPS devolped shortly after, but took numerous Docotrs and about 2 years later before a diagnosis of CRPS. I have lost complete use of my arm and hand, it has spread to the foot on the same side. The pain is excruciating, I can’t tolerate the cold Michigan weather, and we are in the process of moving to TN. Can I please have a list of physicians/ Specialists in Southern Middle Tennessee, near Lawrenceburg, TN, or even near Florence or Decatur, AL?
Looking for CRPS specialist in NY, NH or VT but will accept anywhere in New England (Massachusetts, Maine, NJ, Rhode Island). Been going to Dartmouth for years but they haven’t done anything for me the past year.
Did you find anyone that accepts patients that isn’t just a pain clinic? We are in same situation where they treat pain but not disease and same area.
My son was recently diagnosed with rsd. We have been searching for knowledgeable doctors in our area. If you could send me the list, I would greatly appreciate it. We are in the Mt Airy, Winston-Salem, Charlotte area of North Carolina. I have no issue with driving a distance for the best care possible. Thank you.
Could you please email me a list of doctors in my area that treat CRPS HUNTSVILLE AL. MADISON AL. thank you so much for your time.
I was just definitaly diagnosed with CRPS yesterday, after all other possibilities were ruled out. I was wondering if any of you knew a good physician, and/or pain specialist, specializing in CRPS in the Atlanta, GA area. If not, a physician in Florida, Alabama, or North Carolina area would be okay too I guess. I appreciate any information and advice that anyone can give me as well. Thank you.
Please send a list of specialist in the New Windsor NY 12553 area. Requesting someone who really specializes and not just someone who will give only medication for temporary relief.
Thank you so much!!!
*Had to correct email address.
Hello everyone and welcome to 2021. Please be advised that we are responding to requests for physicians lists in this comment section, and others on the website, by emailing lists directly to those who comment. Please ensure your email address is spelled correctly and that you identify the state you live in when leaving your comment. Thank you!
Could you please send me a list of doctors in the Southeastern Pennsylvania Area? Thank you.
My son is in Charleston SC and has been diagnosed with CRPS and is in excruciating pain. Please forward Doctors/therapists that specialize in CRPS in the South Carolina market. Thank you!
Would you please send me a list of Michiana doctors for CRPS? Or for IN and Michigan (I live on the border). Thank you so much!
Crps doctors in chicago please!
Would you be able to please send me the list of NJ doctors for CRPS? I would be forever grateful
Do you have a list of Dr’s or Treatment Centers for Iowa. My 15 yr old has been battling CRPS in her Right foot & ankle for 2 years. Just getting the diagnosis What treatment would be recommended or not recommended for a 15 yr old? They are suggesting a spinal block or Hypobaric treatments. IS it worth the money if not covered by insurance?
Hello, my 12 year old sister was diagnosed with CRPS this Novemeber and we finally saw a neurologist today, who recommended we go to a speciality clinic. We live in Pensacola Florida. Would you please give us some recommendations? Thank you!
7weeks ago I suffered a comminuted fracture of my distal radius. Since I have experienced burning and neuropathic pain and numbness of my hand. I also have been diagnosed with Charcot Marie Tooth, type 2. Any centers in or near SC that could evaluate and treat. Thanks
Hi, we are in Pittsburgh and would greatly appreciate a list of either neurologists or physiatrists specializing in CRPS. We don’t know where to turn. They have to accept UPMC insurance.
Thank you and God bless you.
Hi! I am a 24 year old post-collegiate runner dealing with crps in my feet after multiple stress fractures. I am a physical therapy student and have taken many of my professors’ advice for treatment but unfortunately nothing is working anymore. I live in Louisville, KY. I would love some advice!
My daughter was just diagnosed with CPRS. Can you please send me a list of doctors who treat this in my area. We live in West Palm Beach Florida.
Could you please sent me a doctor(s) in the Dallas/Ft Worth Texas area?
We are in irvine ca. My som is struggling with chronic pain.. perhaps central sensitization . We have a great PT but I’m not sure docs and therapists are the right ones
Could you please email me a list of doctors who treat or is do you/groups in the Cape Cod to Boston area
I am currently in Ohio, but I am based in California and have more family in Virginia. I am willing to go anywhere to nip this in the bud. Any suggestions for doctors? Ohio is very, very not understanding about pain. I tried to get into a pain doctor in May and he reported me as a drug seeker when I was calling about nerve blocks. He never even found out why I was calling. It is still early. Please help.
I NEED NYC NJ & LONG ISLAND LIST OF DRS
Please send me a list of Physicians who KNOW CRPS in New Jersey I’m Suffering!
Please send me a list of CRPS specialists in the Boston area. Thank you.
Help I’m in Wisconsin
Hi, can you please send along recommendations for Chicago?
My sister has suffered with CRPS for years
and is desperate for relief. Can someone please, please, please offered a some suggestions and a list of doctors in NJ and the surrounding area.
My sister has been dealing with CRPS for years and is desperate for some relief. Can you please, please, please send me a list of recommend doctors for New Jersey.
I have had a CPR sa-4 14 years and my general practitioners isn’t drop me because I have missed other appointments that they have set up for me or rescheduled them due to not feeling well being sick my RSD flaring up or not even having gas to get to the doctor’s appointment so I am looking for a new general practitioner that knows about complex regional pain syndrome in the Tully or Syracuse area of New York
Please send me a list of doctors in my area that are knowledgeable. I have been dealing with this terrible disease for 2 years and pt twice a week psychotherapy once a week and doctors visits ER visits you name it katamine infusions.
Hello, Amy! Can you please let me know what state you live in? Thanks!
My wife has CRPS and we live in South Mississippi. Can you send us a list of Doctors in central Mississippi and Louisiana?
Hey thanks for posting this useful tip here how to obtain the best medical care for crps, I really hope it will be helpful to many. Appreciative content!! This is really Wonderful information, thanks a lot for sharing kind of content with us.
Seeking help for my daughter. CRPS symptoms since 2018 and it just got labeled this summer. She has had multiple Ketamine infusions with no relief. She is only 20 years old. Tried to set up an appointment at the Mayo Clinic in Jacksonville and was told they could not help her. Can you recommend anyone in the Southeastern PA area that I can take her to? I checked all the major hospital web site like Penn and Jeff and CRPS is not even mentioned. We are willing to travel so please send me info on the place that has the most successful treatment results. Thank you
Hi there! Can you confirm your email address or email us at email@example.com? The email address we have for you is not working. Thanks!
Looking for a CRPS/RDS specialist in Ohio. May I have a list?
I’ve been given a diagnosis of CRPS this year. Can you please share a list of doctors who treat this condition in New York City?
Can you please send the NC list please? Specifically Greensboro NC?
Could you please share a list of doctors who treat/specialize in CRPS near Philadelphia, PA?
Can you please send me a list of Pain Management Physicians who treat RSD/CRPS in the Pittsburgh, PA region? I’ve had it for almost 15 yrs now. Thanks so much!
Please send me info about Doctors who specialize in CrPS of arm after wrist fracture. Thank you.
Hello, Lin. What state do you live in?
Can you please send me information on Doctors in Missouri and Iowa? Thank you!
Can I please get a list for Missouri and Iowa. Thank you!
Are there any CRPS certified physicians in Phoenix? Rheumatologist gave differential diagnosis of CRPS and I have an appointment with a neuromuscular neurologist in January 2021.
I have every symptom related to CRPS so I’m confident that this will be the final diagnosis. I also have several other pain conditions such as rheumatoid arthritis, poly arthritis, poly myalgias, peripheral and small fiber neuropathy, degenerative disc disease, and IBD.
I am a post liver transplant patient (7 months) and I believe that the onset of CRPS is a direct result of a negligent nurse.
My transplant went as perfect as anyone could have imagined. I got the perfect liver and I was the last transplant before my transplant center stopped further transplants due to COVID. My surgery took 3 hours and I was expected to be discharged on the fourth day. As expected, on the morning of the fourth day, I was told to get ready to go home. I felt wonderful and better than I had ever felt in my life.
The nurse came in at the end of her night shift to finally empty my drain bulbs from the fluid in my abdomen. I had been sitting in bodily fluid for over two hours and she realized my sheets needed to be changed. She wasn’t happy. As I was preparing to get out of the bed, I asked her to please check that my drain bulbs were attached to my gown. She said they were even though she didn’t look. I told her that I didn’t believe they were and again asked her to check. She was very snippy and annoyed and said that they were. Again, I told her that I didn’t believe they were and that they had fallen before when I had a part of my kidney removed due to a tumor. I told her how painful it was and that I didn’t want that to happen again. She was angry now and yelled that they were that she could see that they were. I wasn’t able to check for myself because I was sitting on the bed and asked her to physically check. She acted like she did but she didn’t. I believed she did but sure enough when I went to stand up, down went the drain bulbs causing me to rupture.
The pain was excruciating and immediately, I knew something was wrong. I could literally feel something in my body change. It’s indescribable. The trauma team along with my surgeon rushed me to the operating room just like you see on TV. I could see my vitals dropping fast and the surgeon and and anesthesiologist kept slapping my face and legs and kept yelling at me to stay awake until they put me to sleep. Sure enough I almost died and sure enough, two months later CRPS kicked in. it is the worst imaginable pain a person can endure as you all know. I’m desperate to find a provider in Phoenix who is CRPS certified. Any help would be greatly appreciated.
We live near Cleveland Ohio. My wife has been suffering with this for years. Her quality of life is very low. Due to the opioid issues, the pain management doctors refuse to give her any more opioids and everything else they have tried does not seem to help. She already has a stimulator implanted in her back, but the CRPS has spread to half her body and the implant does not cover it all. Already getting monthly low dose ketamine infusions but they don’t seem to help anymore much either. She wants to try medical marijuana, but the pain management doctors won’t touch it. She can’t try it while in their care since they do random drug screenings and she does not want to get kicked out. She is losing hope of any relief and when she flares up, there is nothing that helps. She just wants it to end. NEED HELP!!!
Hello, can you provide me with a list of providers for the Phoenix metro area in Arizona?
Hello, can you provide me with a list of providers for the Phoenix metro area in Arizona?
I have been diagnosed with CRPS since March and I live in Wenatchee Wa., and I am finding that there are not many doctors here that know what CRPS is, could you send me a list of professionals for the state of Washington? Thank you
I was diagnosed with RSD in 2013. I live in Glen Burnie Maryland also near Baltimore Maryland. Could you send the list of Doctor’s in my area that treat RSD? Thank you.
My daughter has been diagnosed with CRPS. We have tried blocks, stimulator and ketamine infusions. Nothing is working. Can I get a list for Houston Texas.
Had wrist surgery due to Fx 8/20. Now have all symptoms of CRPS. Trying to locate specialists in Atlanta Ga, anywhere in Ga or northern Florida or Southeastern Tennessee. Please help.
Had wrist surgery 8 weeks ago and now in early stage of CRPS. Would like someone who specializes around my home in Kennesaw Ga. When researching I cannot find anyone that sounds 100% knowledgeable on this. Would love a listing of help around me Thank you.
Is it possible to send me a list of the best doctors in the St. Louis area. But honestly, I am willing to travel anywhere in the US for the best doctor. I have had CRPS in my foot for 4 years. I have been miscerable. I need help.
Thank you for any help.
Good Morning can I please receive a list of docs in Nebraska? Thank you
I live in Ogden Utah, contracted upper right extremity CRPS 4 years ago… I just found out that a screw in my ankle needs to be removed it has come out and I am afraid of going into another surgery and potentially spreading the CRPS… I’ve met a lot of doctors and physical therapists that say they familiar with CRPS but in all actuality they’re not. Please help me in finding an orthopedic surgeon knowledgeable of CRPS, that will take precautions to not spread my CRPS.
I was wondering what doctors were the best in Michigan? Of all hospital’s and or what is there number one hospital to be treated for CRPS? In the US?
Would you please send me the doc lists for KY, OH, IN, and TN? I can travel easily to any of those states from where I live in Louisville, KY.
could you please send a list of the best doctors who specialize in treating CRPS in PA. Thank you!
I live in a small town in nc I have been getting treated by my family physician up until this point but she has left the practice. I need to find a Dr in my area that is actually knowledgeable about CRPS. Can anyone recommend drs in the area?
I live in Southeast OHIO. I have had CRPS for over a year. I have been treated by a pain management doctor and have a stimulator in. It is very hard to find a PCP that knows about CRPS. Any hope that someone can let me know if they know of anyone
What a great feed! Anyone have a list for WA? Prefer Seattle or Sookane area?
Can you please help me find a new CRPS doc in Denver proper-ish? I’m moving in with my son, so I’ll be losing my wonderful doctor in Colorado Springs. I really need a doc who understands that CRPS signs like swelling and color changes aren’t always dramatic after the first year. I also need a doc who will prescribe Low Dose Naltrexone, if possible. Thank you for any help!
Can you please help me find a new doctor who treats CRPS. My Dr of 30 years died. My new Dr doesn’t believe CRPS can move. I feel very hopeless. I have 2 neuro stims and they give me major problems
The dr I’m working with seems clueless about CRPS and I’m getting scared. Ty
Hello, Cara. What state do you live in. Thanks!
My Daughter is suffering from CRPS and is experiencing rapid heart rates. Could you suggest Dr in the South Dakota/Minnesota region
Recently diagnosed with CRPS after an epidural bruised my spinal cord. Currently undergoing physical therapy, sympathetic nerve blocks (2 a week) and a cocktail of narcotic and non narcotic pain meds. All combined, yea, a little relief, but not enough to get more than an hour sleep. Any references to CRPS treatment in the west palm beach, Florida area would be greatly appreciated
Hi, we’re from Wisconsin, my 10 yr old daughter has CRPS. Can you send list of specialists around our area. Thank you!
I cannot imagine what you and your daughter are going through. We have traversed and treated throughout WI and continue to hit roadblocks. Please shoot me the specialist list if you are provided one for WI. I have already sent a request to the contact email from this site. Also, we may be able provide you insight on our experiences thusfar in WI.
I would really appreciate a list of recommended physicians in the Denver metro area. I am at a loss for who can help me get out of the vicious cycle of pain and who is responsive to basic communication.
Can you please send me a list of physicians in Arizona or if not, in the southwest United States?
Please send doctors list for st.louis Missouri! Thank you!
I have been dealing with CRPS since 1998 after a knee injury. Over the years it has spread almost everywhere. Only my arms, shoulders, neck and head have not been taken over. I’m afraid that once it spreads to my arms, my quality of life will diminish significantly. My pain has never been well controlled. I’m looking for a CRPS specialist in the Denver metro area. I was wondering if you had anyone that you could recommend?
Thank you for your time.
I would like information on CRPS. Also who is the best doctor in Michigan for CRPS?
Doctors in Jupiter or palm beach gardens Florida , please
Please send me information as well. It would be greatly appreciated. We live in Richmond, VA and my son has had a year and a half of pain from CRPS. Things are bad 🙁
Can you send me a list for Maryland? My son suffers from CRPS.
Can you please send me a list of Doctors In or around the Boise Idaho Area? I have CRPS TYPE 2 and have had it since 2012, I am having a Really hard time finding a Doctor who knows and understands Crps. Thank you for everything you all do for us This website has been a lifesaver either way.
Hello. I’ve had RSD for 13 years and was treated as an adolescent but I’m now looking for a specialist/ treatment center in Florida for my mother who was recently diagnosed. If there is any information you can give me, I’d very much appreciate it. Thank you for your time.
I live in southeast Indiana around fifty miles from Louisville, Kentucky. Can you send me a list of physicians who treat CRPS?
Hello my mother had a knee injury and needs a knee replacement. In the process she has been diagnosed with CRPS. Her leg and foot is losing feeling and her toes are curling under. If you have a recommendation for someone in the West Palm Beach Florida area the could help us figure out the best treatment that would be extremely helpful. Thank you in advance.
My sister had knee surgery 6 months ago and ended up with crps. We can’t find anyone in our area that knows much about this we live in Mill Creek, Wa. It’s close to Seattle. Do you know of anyone she can see. She is really desperate and we are disheartened. Thanks for any information you can give us.
I live in Oregon and I haven’t been able to find a doctor who’s willing to work with me
Do you have a list of doctors around the Cleveland, OH or Akron, OH area? My previous doctor was wonderful, but my new insurance no longer covers him. I haven’t been able to find a doctor that truly understands this disease, or who will also agree to become my primary doctor.
Thank you so much for your help!
I saw your post regarding finding a dr in the akron/cleveland area? I’m desperately searching for a dr in this area as well and was hoping you have a referal?
Prayers for you and your family. I know how difficult this disease is.
Looking for help. Rsd phase 2 bilaterally. Have had it for 16 yrs. Started in left calf and foot and has progressed to bellybutton to toes both side. Can’t find specialist in Nebraska that deals with the advanced rsd. Please help. Im desperate and would rather die than continue life as it is now.
My 16 year old niece lives in Steamboat Springs, CO. She was diagnosed with CRPS one a year ago and has had 2 ketamine infusions. The infusions helped a little but she is still in daily pain. Additionally, she’s been hospitalized for the past 2 weeks suffering from gastroparesis and has lost 15 pounds. The doctors have inserted a feed tube but she’s vomited it up 3 times already. PLEASE help with any doctor recommendations either in her area or anywhere in the USA.
Looking for doctors that understand and treat CRPS. My daughter (20) has suffered for nearly 10 years and it has been getting worst. Been with Pain Mgmt doc but want someone who understands this best. Please send a list of doctors in a 100 mile radius of central NJ (Matawan)
Could you send me a list of doctors in Utah? Ive been in the chronic stages of crps for the last 15 years.
Thanks for your time and everything you do.
We live in North Louisiana but can travel. Please share your recommended treatment facilities in East Texas including Houston, Austin & Dallas ; anyplace in Arkansas, Mississippi, Northern Fla including Jacksonville & anywhere in Louisiana . Your aid will be greatly appreciated
Alexis, would you be so kind as to email me.
Hello, Tony. What can we assist you with?
I fell off a 7’ladder this past Jan. Then the pain began like groundhog day being diagnosed with CRSD. I live in West Coast of Florida, Clearwater area. I’ve read the prior posts and I’m truly hoping you can forward me your list of doctors (or only 1) that can help me. Thank you sooo much!
I have been living with this since 1989 and it is getting harder and harder to make it through the days. I have my 4th spinal cord stimulator in and the pain center I had went to closed. Do you have a place I might get some help and can you tell me What I can do to get us all some help.
Hello, Kay. Please let me know what state you live in so we can send you the correct resources.
My son was diagnosed with CRPS 3 years ago. What treatment facility or doctors would you recommend? We live in Louisville, KY. Would you recommend The Bridge Recovery Center? Thank you!
Hi there. I am on a desperate mission to help my dad who has recently been diagnosed with CRPS. Can you please send any information on practitioners in Florida? We’re in south Florida. But honestly we would even love information on who the top rated doctors in the country are. Thank you for this article and all this guidance!
My Ortho, after two surgeries for crushed ankle, suspects CRPS. She has referred me to a pain management physician but I want a second opinion before choosing any additional treatments. I can travel for the best interdisciplinary team if needed. I live in Mississippi. Please help me find best help regionally to Mississippi, North Carolina, or Michigan.
Do you have a list of CRPS near Cleveland Ohio by chance.
I am looking for doctors and therapists in the Kansas City area for my daughter with CRPS. Thank you.
I’m on occupational therapist in Utah, looking for a specialist for one of my patients. Thanks so much
Do you have a physicians list for wyoming ???
Please email me physician lists for Florida & western Pennsylvania. Thank you so much!
Live in southwest Louisiana. Looking for drs who specialize in crps. Diagnosed after a broken wrist surgery. Need help ASAP.
Can you provide me with a list of doctors in the Northern KY, Cincinnati, Ohio area please?
I was recently diagnosed with CRPS but apparently have had it for 4 years after multiple surgeries on my foot. I have had horrendous pain for 4 years now and can not find a doctor who is knowledgeable of CRPS. Any help would be greatly appreciated.
Looking for specialists in TN please
Could you please send me a list of DRs in Minnesota?
Hello, could you email me a list of providers in Michigan? Thank you!
Hi, can I have a list of doctors in the Detroit area?
I cannot find a dr to actually treat me in Kentucky. The 7th dr I’ve seen just said hes passing me on to another dr. I was a pm patient in texas you over 10 years same dr without an issue.. but in ky..they keep passing me around with no treatment at all. Any dr in ky capable of treating CRPS in the back? Thanks
Is there any CRPS treatment centers in NJ. My daughter was recently diagnosed.
Sending you a list now, Janet!
Is there a list for Columbus, GA.? Or areas nearby? Thank you!!!
Hi, my Mom has suffered from RSDS since the late 90’s and she recently got into a car accident and her ankle was crushed and her hand and wrist broken. She is having a very difficult time healing, and I believe that we need to get her with an orthopedic surgeon who specializes in CRPS, because the ortho who did her surgery is not understanding what she is going through or how complicated her healing process is due to the CRPS. She is staying with me in the Charlotte NC area. Please help me find a doctor who can help her heal from this terrible accident. Thank you, Jessie.
Our daughter is 24 years old, was diagnosed with CRPS 14 years ago. We desperately need a list of doctors in the Denver/Colorado Springs Colorado area that treat full body CRPS. OR does the Mayo Clinic in Arizona treat CRPS in young adults. Thank you for any and all information you can provide
Hello, Leslie. Please check your email.
I need a list of drs in PA or surrounding states. I’m struggling to find providers.
Could you please send me the names of doctors in the Pittsburgh PA areA
Could you please help me find a physician in the Pittsburgh Pa area
Please send me the list of doctors for the Washington, DC metropolitan area.
Can you please provide CRPS orthopedic doctor recommendations in the South Jersey Area.
Thank you, Marni
Could you please to send any CRPS doctor recommendations for South Florida.
Thanks in advance,
How can I find an excellent rehabilitation-oriented pain specialist for CRPS in the area I live in? I’m located in the Cupertino/Mountain View/Palo Alto/Los Gatos area. I’m currently seeing a pain management specialist but he’s mainly focused on prescribing meds and wants to to lumbar blocks.
I’m already subscribed to the mailing list.
Hi Karen, Good evening & Grace To You! I have an awful case of Central Pain Syndrome since 2014 and have had to live with level 10+ pain 24/7..mine is a deep burning on the entire left side of my body. Every opiate has failed. I just came across Dr. Feinberg this evening. He’s not to far from where you are. Im east of Sacramento a few miles and i’m going to call his office in the morning. He supposedly has a lot of experience with our condition.
His address is 825 El Camino Real — Palo Alto, CA 94301
Steven Feinberg, MD, Physical Medicine/Rehab, Palo Alto, CA
Physical Medicine/Rehab Palo Alto, CA
Medical Director Feinberg Medical Group
For 5 years I’ve been looking for anyone who actually has what I have to see how they are dealing with this awful condition. No luck so far. I wish you the best and will be praying that you find the relief so badly needed.
God’s rich blessings,
Gregg Harris (817) 500-1333
Hi, this Mark from Indianpolis, broke ankle 5 weeks ago, just got diagnosis of CPRS , could I have list of best providers in my region. Present Team suggesting increasing opioids, which is not helping much anyway. Looking for the experienced interactive team rather than a single provider recommending lucrative mostly unhelpful procedures,
Alexis, I’m looking for a CRPS specialist in the RI area willing to travel to CT or MA as well.
Hello, I am another Florida resident looking for a good CRPS specialist. I found Dr. Dorsher at the Mayo Clinic in Jacksonville. He was the best doctor I have found in the 4 years since I was diagnosed. Sadly, he just retired and they do not have anyone to replace him. Does anyone have another Doctor they could recommend?
Could you please send me a list of providers in Texas?
Our daughter is 17 y/o – we have ruled out so many things and the Pediatric Neurologists are leaning towards CRPS at this point. Who are the best, regardless of cost/insurance anywhere in the US? We are in TN. My email is TNGregScott@gmail.com
I am looking for a dr around me that treats RSD Patient in stage 4 and a infusion pump.The dr I have keeps cutting me back on morphine and pain medication.I am so treated like I am a animal that was just picked up and am now being neglected. Please help me find a GREAT Dr who does RSD stage 4.Who will treat me like a human Thank you kindly
Just sent you an email so we can figure out what state you are in!
Could I please have a list of providers for Florida? I live in Central Florida but I am willing to travel. Thank you
I was diagnosed with RSD/CRPS in 2014 due to an ankle surgery that went wrong. I use to live in Texas and now I am living in New Mexico. I am on Medicare and need a network of doctors to handle my case. I recently had an emergency surgery on my other ankle due to a horrible accident that almost severed my foot. There are clear signs of CRPS settling in now. I have a stimulator which helps some and I take Lyrica for the nerve pain which also helps some. Can you please send me a list for New Mexico Dr.’s who specialize in CRPS that take Medicare.
I really need a pain specialist. I called and gave my information to 3 pain management specialists and they will not accept my case. I need a pain specialist. I need treatment for this disease and I need it ASAP.
Please help me out if you can. I will travel to anther state if i have to.
I am in Lehighton, PA. I am in between the Pocono’s and Lehigh Valley (Allentown). I am about an hour and a half away from Philadelphia.
HI I am a care manager for UPMC and I am working with a youth who has been diagnosed with CRPS. They are struggling with finding psychotherapy in Pennsylvania that are familiar with the disease. IS there anything you can suggest to help? Thank you!!
Hi, I had a Achilles repair (5 weeks post-op) and have symptoms of CRPS. A pain doctor diagnosed me with CRPS but my Ortho (and Ortho 2nd opinion) said it was too soon & they think with therapy & time it will go away but may take months. Can you please provide a list of doctors in the Chicago Suburbs and/or Chicago? I want to give myself the best chance. Thank you!
Sorry to hear your problems! Any luck finding a physician, can you recommend one? Thanks
Hello, Mike. What state do you live in?
Central ILLINOIS . Crps upper right quadrant from electrocution accident. Been to 5 different pain clinics, at my sixth now. Almost all of medications have had really bad side effects. I.e. allergic,trouble urinating,serotonin syndrome, you name it. Norco 10/325 takes little bit of edge off, I don’t know why. Hydromorphone er worked well but current treating physician is more worried about addiction than me having some semblance of a life. Any recommendations or ideas? How can I advocate for myself without being labeled a “ drug seeker” or losing my cool? they can’t understand why I don’t want a scs trial. My research and even the top neurosurgeon says it can spread which it already has. Any ideas please?
My wife is in the same boat and has went through every pharm. drug there practically is. There is a name for it but the medication only provides relief for 6-8 months before her system no longer metabolizes it like it should. I know that the feds have cracked down on opiate prescriptions nationwide…and rightfully so for individuals that abuse them or have a history. But those with legit issues are really struggling. Very hard to find a doctor that understands, let alone has experience treating CRPS appropriately in our area. Ketamine has been the only drug that has provided her pronounced and longer lasting pain relief. We are planning travel to a special center in FL and willing to travel anywhere where someone correctly knows how to treat this. Was curious on how your search in IL is going. We live in WI.
Can you provide physicians treating CRPS in Texas?
My daughter has been battling this terrible disease for over 4 years and is overwhelmed with pain and sorrow. We have had the spinal stimulator, PT, drugs, Marijuana etc.. and now
she has no hope left. I am searching for a facility that can
help with this condition. We are in Norristown, PA 19403.
Thank you for any help you can give.
May I please have any information about physicians that treat CRPS in South Central Michigan (near Ohio/Indiana borders, as well as Ann Arbor and Lansing). I am also looking for a 5 day ketamine treatment clinic. I was blessed to be able to try outpatient, 1 day treatments. They helped, but it was not enough Thanks so very much!!
I have CRPS,Migraines & TOS,is there a doctor who can help me ,in the Green Bay,Wi. area. I currently see a pain specialist for CRPS & another for migraines.I’ve had numerous surgeries for TOS.
Hello. Toward the end of last year I was diagnosed with CRPS. PLEASE PLEASE PLEASE send me a list of doctors that specialize in this disease. I live in Orlando, Florida. The pain and deterioration in my wrist, fingers, hand, entire arm is getting worse. I have also began to feel some of the ‘zapping’ in my other arm. Thank you in advance!
Looking for treatment for son who was diagnosed with crps – we are in denver area. Son was injured on 12/24/2018 on duty police officer have been dealing with workers comp – he needs better help it is getting worse
Looking for treatment In Dallas-Fort Worth area. CRPS for 43 years and am always told I am beyond the scope of practice. Any recommendation will be appreciated.
Can you give a recommendation of a doctor near Ogden, Utah who specializes in treating CRPS?
Please send me a list of doctors & therapists in eastern Pa area who treat CRSD. Thank you.
Another emailer hoping you can help. I was after a year diagnosed with possible having crps. Do you know of any specialist around NY state? It has taken me a year just to get a maybe and I have been to ever avenue locally that I can think of and my symptoms are getting worse.
I would really apricate it
I live in Jacksonville,Florida and have not been able to find a doctor. I was diagnosed with CRPS almost two years ago.
Are there any physicians who treat CRPS in New Mexico? If so, can you please provide me with a list of those physicians? Can you also provide me with a list of physicians in Central Florida also? Thank you!
CRPS docs in Colorado please?
CRPS Drs in metro Denver Westminster, Broomfield area. Please! THANKYOU!
I’m having difficulty finding a physician in the San Diego CA area (recently moved) to take over treatment of my 7 year CRPS (3 limbs, heart, gastric) … who will accept MEDICARE. Any leads would be greatly appreciated! Thank you!
I am a physician in Birmingham, Al looking for the best place to evaluate and treat my family member, 47 y/o otherwise healthy female, 4 weeks out from a mid-toe fracture, now with progression of symptoms compatible with CRPS. We can travel if needed. We would ike to start appropriate treatments soon given evidence it can be beneficial. Thank you.
In addition to my last request – my friend received a diagnosis of CRPS after a surgical procedure in 2014. In 2016, she wound up with a spinal cord injury after another surgery to help with the CRPS and was later diagnosed with dysautonomia. This second surgery did not use ketamine, btw. Her most recent issue has been autonomia dysreflexia (she’s been experiencing an impacted colon and bladder retention most recently with dangerously high high blood pressure levels). I don’t know if these conditions are related given that two entirely different surgeries seemed to trigger them. Should she be seeing two different experts who deal with each condition and work together? Or Will a CRPS expert alone know how to handle her dysautonomia issues and the life threatening issues it may be causing? We really have no idea where to go from here and are not really receiving any plan of action from the medical community near us. I fear that her issues are becoming life threatening, but with so much trauma from post surgeries and dismissals from ERs, she is reluctant to address the symptoms that are now developing. I’m hoping some expert suggestions from this site can follow lead her to a plan of action on how to treat the root issue and the resulting issues from both.
It’s worth asking her CRPS physician if they know anything about dysautonomia, and if they do not, they should be able to recommend another physician who does. A second opinion also never hurts!
Could you please send a list of physicians/therapists in the NJ/NY area? Thank you!!
I can find a doctor in the Springfield Illinois area that will diagnosis my foot issues after having foot surgery and seven different pieces of metal placed in my foot. Surgery was one year ago.
thank you !
Hi, would you be able to direct me to specialists in NC? Thank you!
My sister has CRPS,lymphedema and a severe infection in her leg. The doctor recommended Sympathectomy as the only option for treatment. We are researching doctors that do this procedure and the success rate. Any advice or suggestions would be welcome.
Can you please send me a list of doctors in NJ, please!
I developed CRPS after breaking my left hand and being put in a cast in March 2018. My hand doctor recognized my condition of CRPS when I started showing all the symptoms and immediately sent me for occupational therapy so luckily I never went past stage 1 of CRPS. It took me 7-8 months to start feeling better.
I just broken my right ankle on both sides on Christmas a few days ago while I was visiting relatives in NJ and was put in a cast after the orthopedic surgeon saw my x-rays. He said I may need two plates on each side requiring surgery if this does not work and I fear my CRPS may travel to my right foot/leg because of this injury. While I was in NJ my leg collapsed on me because I also need a hip replacement surgery and I do not have an orthopedic doctor where I live in Lantana (Palm Beach County) Florida with knowledge of CRPS and I have now returned home to Florida. The doctor in Nj said I must find an orthopedic doctor in Florida experienced with patients that have had CRPS in a limb. I need to have my seriously fractured right ankle checked within a week from December 25th 2019. Can you please recommend a orthopedic surgeon I can feel confident about because he understands the special precautions he must take for a patient with a prior CRPS in another limb and has the experience in treating a broken ankle on both sides as well as a hip replacement with osteoarthritis (bone on bone condition and a bone spur). I would be very grateful for a recommendation. Thank you for your time. Best Regards, Judy
Hello, Judy! Please check your email.
Would appreciate a list of doctors experienced with CRPS in the Orlando area. Thank you and Happy Holidays.
Hi, My wife has been dealing with CRPS now for over 3 yrs. I am looking for the utmost experts in this field. I am willing to take her anywhere to get her some help. We are located in Oregon and she is under a pain management contract with her pain specialist and also had a device to block pain implanted in her back. She has seen some relief from the implant but unfortunately it has caused other issues as well. To the point that she is seriously thinking of having it removed. Any info you have will be greatly appreciated. Thank you
Could you please send me the NY list? NJ too? Thank you!
My brother is dealing with CRPS since a TKR in May 2019. Looking for a specialist in Western PA area. He has had a sympathetic nerve block & it didn’t result in any change. He has recently had arthroscopic surgery to remove scar tissue on Nov. 28,2019 & the orthopedic surgeon believes he has a combination of CRPS and synovitis. We are looking for a specialist to try to treat this. His knee has already filled up with fluid and was drained on Dec. 18 which is only 2 weeks after the arthroscopic surgery. Any recommendations for the Pittsburgh area? or Cleveland Clinic?
I’m ditching Kaiser insurance to go with a PPO. I received CRPS diagnosis in September after 3 years and 4 hospitalizations being treated like a lier and drug addict (super fun).
I’m desperate to find a CRPS Pain Management doctor with some compassion who can help me lower my pain from I wish I was in a coma (or pushing daisies) to I wonder if I’m being stung by a bee.
Do you have any recommendations for the Los Angleses area?
Thank you for your time.
Please, help me find a CRPS/ pain management doctor in the Philadelphia area for my daughter. Her doctor just doesn’t understand CRPS. She had a DRG stimulator I planed 2 weeks ago. I am desperate.
Hi I am looking for a full comprehensive center to treat a 23 year old near Denver. We are willing to travel if neccesary. I just really want a place that has it all under one umbrella
Can I have a list of all the treatment centers in PA and NJ (I live right outside Philadelphia)
I would also like to receive the list for these states! Much appreciated!
Can you provide a listing of an interdisciplinary CRPS facility in or near Birmingham, AL? Also, any support groups for CRPS located in the same area? Thank you.
Please send your list of doctors in Texas who practice the biopsychosocial perspective in Texas. I am in the Austin area.
Hello, are you able to recommend any CRPS specialists in the the San Bernardino, CA area?
Hi I have CRPS and my DR just put in a spinal cord stim it’s a workman’s comp. injury and Dr. but I think he just rushed in doing so and really will not listen to me. is there any specialists in my area? I live in Whiting Indiana. but really close to Chicago IL. also
Thanks for your time
Hello, Nickalus. Check your email. Thanks!
Did you happen to find a good provider in Chicago area?
I hope you are doing well!
Hi- I live in West palm beach, FL. Could I get a list of CRPS treatment doctors in my area?
Done! Thanks, Staci.
Can you please recommend an interdisciplinary faculty neat 07087 NJ
Is there a list of physicians for Minnesota. If so please send it to me.
Hello, Mike. Check your email!
I have had RSD for almost 40 years, more than 20 before correct diagnosis. Could you send me the RSD physician list for PA.
Thank you so much
Check your inbox, Leslie! <3
Can you send me physician for the Pennsylvania area. I’m in Quakertown pa 18951
Hello! What are the top 3 treatment centers in the US? Could you also share the best centers for Connecticut/North East?
Hello, Julie. These lists are on their way to you. Thanks for the comment.
Hi Please send me a list of CRPS specialists in the Boston/ RI area who can diagnose and treat. I am going on 4 years of living with chronic pain. I have been diagnosed with maybe CRPS by two doctors, maybe myofascial pain syndrome and maybe fibromyalgia. I am 30 miles west of Boston.
I am also outside the Boston area with a maybe diagnosis of CRPS. Can I also be sent a list of CRPS specialists in the Boston area who can diagnose and treat?
Are there any RSD physicians that have taken a certified and accredited course in diagnosing and treatment in my area. I live in Little Egg Harbor, NJ
Hello Caron. We just sent you the list. Thanks!
Please send list of best CRPS treatment centers. Grand daughter is 16 and lives near Minneapolis/St. Paul, but we live near Ft Myers, Fl. where she can travel. Mayo in Rochester, Minnesota is not good for this treatment.
Please send me a list of doctors in or near Clarkrange TN
i had TKR 11 months ago & have been told I now have CRPS, I have tried nerve blocker, ephipural, and general pain medication, nothing is working . Is there a treatment center in NEW JERSEY. I have heard MAYO in FLA. is good and I am willing to travel. HELP PLEASE
Hello Steven. We emailed the list to you earlier today. Thanks for commenting!
I saw Steven’s email. I have CRPSII, I had had a wonderful pain management doctor years ago but he is no longer practicing. I have learned that not all medical professionals are familiar with my condition. Can you please send me the NJ list. Thanks for your assistance.
Hello, Brenda. I just sent you the list. Have a great week!
May I also have the FL list pls
Check your email, Janet! I have sent you our physician list for Florida.
I live in Boynton Beach Florida. How can I find a treatment center in my area?
Check your email, Cynthia! We just sent you our physician list for Florida.
Please send me the doctor list for ny and nj I’m desperate for help
Do you have any physicians in or near Cincinnati, Ohio?
I developed CRPS, after a a TKR, before the diagnosis, I was told I first needed a THR, when that didn’t help, the diagnosis was my spine.
After a spinal fusion, still no help. Instead these surgeries and all the other physical treatments, injections, needling, nerve blocks, etc have made it worse.
Any direction for help would be appreciated. I have been told there no one here who treat CRPS
Can you forward me a list of doctors who treat CRPS in Florida? Thank you.
Please send providers in central NJ
My daughter suffers from CRP.
The pain is unbearable. She sustained a spinal cord injury at C4. Where can we go for treatment.
Hello, Mary. What state do you live in?
My son has suffered from CRPS for almost eight years. He has never had success finding the kind of doctors recommended in this site. What doctors are there in North Carolina? He has had all the other kinds, stimulator, unsuccessful, ketamine infusion, disastrous, pain management, not working. He is bedridden. Any help out there anywhere?
I saw your post. Have crps or rsd. Live in delray beach. Dr I was using closed his practice. And retired. Saw you were asking for list of Drs. Am desperate to find one. Greatly apprec if you could send me list or how to get one. Is there local group? Thanks for your help in advance. Wishing you less pain. Sandy